What are the Difficulties of Using Open Research Data in clinical research? — Pubrica

3 min readOct 26, 2021

Open Research Data

In its most basic form, data sharing is the practice of making empirical data from researchprojects freely and unqualifiedly available. Shared data, like shared materials, can be stored in additional online files with a published paper, either part or under a distinct DOI. When data is shared, readers have on-demand access to the data files from which the reported analyses are produced while reading the findings section of a publication. The amount of detail that an author may drive into while discussing their data is limited in manuscripts. As a result, authors will only report what they believe readers will either (a) want to know or (b) need to know, which frequently results in reports of only summary findings: basic sample descriptive information, nominal information for statistical significance tests (such as condensed or rounded p-values), or the use of paradigms to represent trends in open-ended data collection services.

Features and Guidelines to Share Research Data

SMART Experimental Design Boosts Data Reusability

Specific, Measurable, Attractive (or Achievable), Relevant, and Timely is an abbreviation meaning Specific, Measurable, Attractive (or Achievable), Relevant, and Timely. This method aids in determining whether or not a concept is viable in terms of time and finances. Whether doing a wet or dry lab Experimental Design, it is critical to devote time and effort to the design of the experiment before getting hands-on. Scientists characterise their experiment as simple as feasible while keeping it as complicated as required after passing these criteria. A good data management strategywill outline the whole data treatment process both during and after a project.

Standard Formats Facilitate Data Exchange

Over time, science has become more complicated and multidisciplinary. Scientists must develop a language Franca through which they can interact and exchange data. It is desirable to transmit data using standard file formats rather than proprietary file formats; however, selecting a standard format to represent data and metadata is not always straightforward.

The FAIR Guideline Principles Ensure Data Transparency, Reproducibility, and Reusability

FAIR is the acronym for Findable, Accessible, Interoperable, and Reusable. The FAIR principles are intended to serve as a roadmap for data producers, published journal papers(BK2) and controllers. FAIR data, according to the above-referenced paper, should be:

· Findable: data has a unique and permanent identifier (PID); metadata properly identify and fully explain the data to which they relate; and (Meta) data is placed in a findable repository.

· Accessible: Metadata is recognised using open and standard protocols; metadata is accessible even if the data is no longer available.

· Interoperable: (Meta) data allow for platform interchange and are machine-readable; (Meta) data are FAIR; and, where necessary, refer to other sources of (Meta) data.

· Reusable: (Meta) data are thoroughly defined; (Meta) data have a clear and easily available licence; (Meta) data adhere to community-driven standards

About Pubrica

At Pubrica, we collect data from a wide range of sources and perform semantic annotation based on the clinical research questions that you want to solve. Pubrica has the vast majority of the data in the form of doctor’s notes; electronic medical records, prescriptions, and similar information are available. Although therein lies the golden possibility of big data in medical care, but it’s challenging to yield valuable insights due to complex, unstructured, and longitudinal and voluminous data.

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